Patient Profile: Yasmeen Anis, “Never Ever Give Up”

Tuesday, May 10th, 2016

May 9, 2016 – Yasmeen Anis, a person with thalassemia, shares her personal story below. CAF thanks Yasmeen for letting us share this story with you. NEGU – Never Ever Give Up – is something Yasmeen’s best friend told her one day, and it’s a motto that she’s kept since that day. Diagnosed with beta […]

Phase 3 Trial of Luspatercept Begins in U.S.

Friday, May 6th, 2016

May 6, 2016 – Celgene in partnership with Acceleron is currently conducting a Phase 3 study of the protein luspatercept in beta-thalassemia called The BELIEVE Study. Previous studies indicate that luspatercept helps increase the production of mature red blood cells. In a Phase 2 study of adult patients with beta-thalassemia, luspatercept was shown to increase hemoglobin levels and to decrease […]

CDC Raises Awareness for International Thalassemia Day

Friday, May 6th, 2016

May 6, 2016 – In honor of International Thalassemia Day (May 8), the Centers for Disease Control and Prevention (CDC) has posted information about thalassemia on their website and a new profile of a thalassemia patient on their Flickr album. You can view the CDC page by clicking here and the new profile of Yanyi […]

Staten Island Golf Outing is a Hole in One

Thursday, May 5th, 2016

May 5, 2016 – The Staten Island chapter of CAF held its annual golf outing on May 4 and the event was a definite hole-in-one. More than 130 people attended this wonderful day on the links at the South Shore Golf Club. The weather was cloudy, but spirits were sunny and shiny and a splendid […]