Care Walk 2016 Locations

Thursday, March 31st, 2016

We are in the process of gathering information on public Care Walks. Unless otherwise indicated, the Care Walks below are scheduled for Sunday, May 1, 2016. If you are organizing a Care Walk for CAF and want to have it listed here, please contact mary@thalassemia.org. Register for a Care Walk or support a Walker or Team […]

Tee Off with the Staten Island Chapter on May 4

Sunday, March 13th, 2016

March 13, 2016 – Staten Island’s South Shore Golf Club is the place to be on Wednesday, May 4 as the Staten Island chapter’s 2016 Cooley’s Anemia Golf Outing takes to the greens. Registration and lunch are at 11:00, in advance of the 12:30 shotgun start.  Cocktails and dinner follow at 6:00.  Want more?  There’s also […]

Join 2016 Care Walk and Get Chance to Win Gift Card

Friday, March 11th, 2016

March 11, 2016 Register for 2016 Care Walk at http://bit.ly/cafcarewalk! For a list of Care Walk Locations, click here.

TIF Seeks US Patients to Test New Programs

Thursday, March 10th, 2016

March 9, 2016 – The Thalassaemia International Federation (TIF) is seeking U.S. patients to help test two new projects geared toward the thalassemia community. The projects, the ThaliMe app and a Thal e-Course, are described below. Those interested in participating or learning more should contact TIF at thalassaemia@cytanet.com.cy. ThaliMe: TIF seeks 10 patients to pilot […]

Phase 1 Trial of Hepcidin Formulation is Enrolling

Monday, March 7th, 2016

March 6, 2015 – San Diego-based La Jolla Pharmaceutical Company is currently seeking qualified patients for consideration in their trial in Patients at Risk for Iron Overload using its novel formulation of hepcidin (LJPC-401). Hepcidin, an endogenous peptide hormone, is a naturally occurring regulator of iron absorption and distribution. Manipulation of hepcidin has the potential to […]