We are in the process of gathering information on public Care Walks. Unless otherwise indicated, the Care Walks below are scheduled for Sunday, May 1, 2016. If you are organizing a Care Walk for CAF and want to have it listed here, please contact mary@thalassemia.org. Register for a Care Walk or support a Walker or Team […]
March 13, 2016 – Staten Island’s South Shore Golf Club is the place to be on Wednesday, May 4 as the Staten Island chapter’s 2016 Cooley’s Anemia Golf Outing takes to the greens. Registration and lunch are at 11:00, in advance of the 12:30 shotgun start. Cocktails and dinner follow at 6:00. Want more? There’s also […]
March 11, 2016 Register for 2016 Care Walk at http://bit.ly/cafcarewalk! For a list of Care Walk Locations, click here.
March 9, 2016 – The Thalassaemia International Federation (TIF) is seeking U.S. patients to help test two new projects geared toward the thalassemia community. The projects, the ThaliMe app and a Thal e-Course, are described below. Those interested in participating or learning more should contact TIF at thalassaemia@cytanet.com.cy. ThaliMe: TIF seeks 10 patients to pilot […]
March 6, 2015 – San Diego-based La Jolla Pharmaceutical Company is currently seeking qualified patients for consideration in their trial in Patients at Risk for Iron Overload using its novel formulation of hepcidin (LJPC-401). Hepcidin, an endogenous peptide hormone, is a naturally occurring regulator of iron absorption and distribution. Manipulation of hepcidin has the potential to […]
