February 13, 2015 – Join the Suffolk Chapter of CAF’s Paint & Sip Fundraiser on March 26, 2015! Relax and unwind, have a glass of wine or beer and let your creativity flow. Whether you’re a skilled artist or have an elementary school painting style, have no fear – we are not judging here! Proceeds […]
February 2, 2015 – Thalassaemia International Federation ( TIF) has announced a new thalassemia fellowship opportunity, established in honor of the late Renzo Galanello, Professor of Pediatrics at the University of Cagliari, Italy, and Director of the 2nd Pediatric Clinic, Department of Biomedical Sciences and Biotechnologies, Ospedale Regionale per le Microcitemie. Dr. Galanello was a respected and […]
February 2, 2015 – Thalassaemia International Federation (TIF has announced its 2nd International Photography Contest 2015, which is launched with the aim of creating awareness about thalassemia, in the context of the International Thalassemia Day (May 8). Participation in this contest is open for all ages, and all countries across the world. Deadline The deadline for the competition […]
January 27, 2015 – Registration for the Cooley’s Anemia Foundation’s 2015 Care Walk Is Now Open! www.thalassemia.org/CareWalk2015 Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. The Care Walk on May 3, 2015 will raise funds to fight thalassemia, […]
January 22, 2015 – A new trial site for the Northstar Study of gene therapy in patients with beta-thalassemia major has opened up in Los Angeles, CA. This trial site is in addition to the ongoing trial sites located in Chicago, Philadelphia, and Oakland. To determine whether you might be eligible to participate in the […]
January 16, 2014 – The Staten Island Hilton Garden Inn will be ablaze with merriment and dazzling dancing on Saturday, February 14. That’s when the New Jersey chapter of CAF will host its annual “Let Your heart Dance.” One of CAF’s most eagerly-anticipated annual events, the “Let Your Heart Dance” features a full sit-down dinner, […]
We are in the process of gathering information on public Care Walks. Unless otherwise noted, the Care Walks listed below ill take place on Sunday, May 3, 2015. Please check back here later to see if a Walk has been added near you. Arizona Chandler Team Arizona Desert Breeze Lake in Desert […]
January 13, 2015 – Below, Dr. Richard Ward answers some commonly-asked questions regarding non-transfusion-dependent thalassemia and its treatment. Non-transfusion-dependent thalassemia (NTDT) is the term given to individuals with thalassemia that do not require regular blood transfusion but who still have some complications. This differentiates you from both thalassemia major and thalassemia trait/minor, respectively. There are […]
January 12, 2015 – We would like to offer this advice from our Medical Advisory Board Chair, Dr. Ellis Neufeld, concerning some situations in which one may need to consider temporarily halting chelation therapy while treating another issue: 1. As a general rule, patients should always halt chelators (any chelator) temporarily for fever, and call […]
January 12, 2015 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community. (A brochure about CAAF can be downloaded by clicking here.) Following is a report from Lyle Dennis and […]
