April 22, 2015 – The World Health Organization (WHO) will present the Dr LEE Jong-wook Memorial Prize for Public Health to the Thalassaemia International Federation (TIF) at 68th World Health Assembly on May 21 in Geneva, Switzerland. The prize is one of the most prestigious honors given by WHO and is given to nongovernmental organizations […]
April 21, 2015 – The agenda for CAF’s 2015 Patient-Family Conference is available and can be downloaded by clicking here. For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ. Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for […]
April 19, 2015 – Join the Long Island chapter in a Care Walk for Thalassemia on Sunday, May 3! Come walk with us in support of those born with thalassemia! Join us for some exercise, family fun and a great cause. And be a part of the Fight for a Cure! Where: Christopher Morley Park, […]
April 1, 2015 – A Care Walk will be held on May 2 in West Babylon. One of the teams participating is Team Zayna, named in memory of Zayna Connolly, a child with thalassemia who passed away earlier this year. Below, Sarah Baqueri Connolly speaks about her and her husband’s involvement with Care Walk this […]
March 31, 2015 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community. (A brochure about CAAF can be downloaded by clicking here.) Following is a report from Lyle Dennis […]
April 1, 2015 – Novartis announced that the Food and Drug Administration (FDA) has approved Jadenu (deferasirox) tablets for the treatment of chronic iron overload due to blood transfusions in patients 2 years and older, and for chronic iron overload in non-transfusion-dependent thalassemia syndromes (NTDT) in patients 10 years and older. Jadenu is a new […]
March 27, 2015 – Registration is now open for CAF’s 2015 Patient~Family Conference! For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ. Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for U.S. individuals with thalassemia and their family […]
March 25, 2015 – Sandy Gilbert recently joined CAF as our Patient Outreach Director. Below, we speak to Sandy about a special aspect of her job: acting as a resource for patients who are curious about clinical trials. Sandy can be reached at 212-279-8090 X 207. CAF: You are working with patients to help them […]
March 24, 2015 – Nicole Walsh and Rupert Ho have adopted two children with thalassemia from China. CAF talks with Nicole below about their experience as adoptive parents. CAF: When did you adopt your children? Nicole: We adopted our son, Aaron, when he was 3 years old, and living in an orphanage in Southern China. […]
March 21, 2015 – For the second year, Erica Stick is organizing a Care Walk in St. Louis. CAF spoke with her briefly about her experience with Care Walk. (You can donate to or learn more about the St. Louis Care Walk by clicking here.) CAF: How did you come to be involved in Care […]
