Year: 2015

Tony Laurino Honored at Suffolk Gift of Life Ball on June 18

June 11, 2015 – Anthony C. Laurino, CAF’s National Fundraiser Advisor and a mainstay of the Suffolk chapter for many years, is being honored at the chapter’s annual Gift of Life Ball on June 18. This wonderful evening takes place at Villa Lombardi ‘s at 877 Main Street in Holbrook, NY, starting at 7:00 p.m. Black tie […]

Read more


Paint Party Fundraiser is June 20

June 8, 2015 – Let your inner artist out at the “Cooley’s Anemia Paint Party” on June 20! The Long Island chapter of CAF will hold this enjoyable event from 7:00 to 10:00 p.m. at the New Hyde Park Elks Lodge, 901 Lakeville Road, New Hyde Park, NY. You don’t have to be an experienced […]

Read more


OSIA Verdi Lodge Care Walkers

May 19, 2015 – A big shout out to the Giuseppe Verdi Lodge of OSIA, who continue to be among our most consistent supporters and boosters! Their Care Walk this year raised more than $950. We appreciate the love and support of all the brothers and sisters of OSIA.

Read more


Texas Hold ‘Em Tournament for CAF is May 21

May 13, 2015 – Cut the deck and get ready for fun! Life Quality BMW’s Annual Texas Hold ‘Em Tournament and Fundraiser for Cooley’s Anemia will be held Thursday, May 21 at Life Quality BMW, 6223 2nd Ave in Brooklyn, NY! Check-in is at 6:30 and the start time is 7:00. For details, visit https://www.firstgiving.com/fundraiser/lifequalitybmw/Texasholdem2015.

Read more


Parent Perspective: Raising a Child with Thalassemia

May 13, 2015 – Amy Long, the mother of a child with thalassemia, has generously shared her experiences with raising her daughter, who was born with thalassemia. CAF thanks Amy for allowing us to post this warm and loving story. Raising a child with thalassemia is both devastating and rewarding. By having a child with […]

Read more


TIF Announces Winners of Video Challenge Contest

May 13, 2015 – The Thalassaemia International Federation (TIF) has announced the winners of its “Living with Thalassemia” Video Challenge Contest. Those winners are: Winner of the First Prize – 500 USD Marsha De Salvatore for the video “Comedy Therapy” Description: The inspiring story of a patient and a stand-up comedian who talks about […]

Read more


Help Include Thalassemia in NHLBI Strategic Vision

May 12, 2015 – The National Heart, Lung and Blood Institute is seeking input from the medical and patient communities for their Strategic Visioning Process. We encourage members of the U.S. thalassemia community to participate to help ensure that the needs of the thalassemia community are heard and considered as the NHLBI makes its plans […]

Read more


Cooley’s Anemia Advocacy Forum Update: May 1, 2015

May 1, 2015 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community. (A brochure about CAAF can be downloaded by clicking here.) Following is a report from Lyle Dennis […]

Read more



June 4 is Gala Day for CAF

April 25, 2015 – The Lighthouse at Chelsea Piers will be sporting a special glow on June 4 as CAF descends upon the venue to hold its 2015 Gala! “This year’s Gala looks to be a very special evening,” says Anthony J. Viola, CAF National President. “As always, the Committee has done sterling work, going […]

Read more


Secured By miniOrange