CAF Awards $195,000 Funding in Medical Research Fellowships

Thursday, July 30th, 2015

July 29, 2015 – Three new Cooley’s Anemia Foundation Medical Research Fellowships have been awarded for the 2015-2016 grant cycle. Combined with the three Fellowships which have been renewed from the previous cycle, the total amount of research funding for the current cycle comes to $195,000. The recipients were selected by members of the CAF […]

Slides from 2015 Patient-Family Conference

Wednesday, July 22nd, 2015

July 22, 2015 – This year’s Patient-Family Conference was a notable success, with much valuable information presented over the course of the two days. CAF is pleased to make available in pdf form some of the information presented at the Conference. In order to access the pdfs, click on the title of each presentation (below). […]

August 1 Car Wash for CAF on Long Island

Wednesday, July 22nd, 2015

July 22, 2015 – Team Zayna will be holding a Car Wash to raise funds for CAF on Saturday, August 1, starting at 10:00 a.m. The event will take place at the American Legion hall at 730 Willis Avenue, Williston Park, NY. The cost for each car is $6.00. CAF thanks Team Zayna for their […]

Download CAF Focus Group Report

Wednesday, July 22nd, 2015

July 21, 2015 – This spring, CAF sponsored a series of focus groups among 102 individuals with thalassemia and parents of individuals with thalassemia in order to better assess the needs and wants of the U.S. thalassemia community. We are happy to now share the results of this project, which was conducted by Stat One […]

Staten Island Blood Drive on August 2

Monday, July 13th, 2015

July 13, 2015 – Roll up your sleeves, residents of Staten Island, NY: The Staten Island chapter of CAF and Our Lady of Pity Church are once again holding a summer blood drive, this year on Sunday, August 2 from 8:15 to 2:15.  The drive will be held in the Cardinal O’Connor Center at the […]

Photos from 2015 Patient-Family Conference

Monday, July 13th, 2015

  July 13, 2015 – This year’s CAF Patient-Family Conference was a great success.  One of the most wonderful things about these Conferences is the opportunity for so many members of the thalassemia community to get together and exchange experiences, talk and just have fun. Below are a few pictures (photos by Thatcher Hullerman Cook) […]

Cooley’s Anemia Advocacy Forum Update: July

Tuesday, July 7th, 2015

July 7, 2015 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community.  (A brochure about CAAF can be downloaded by clicking here.)  Following is a report from Lyle Dennis […]

Queens Chapter NY Yankees Fundraiser

Monday, June 29th, 2015

June 28, 2015 – Watch the NY Yankees play the Toronto Blue Jays from great seats while supporting CAF!  The Queens chapter of CAF has seats in the Audi Yankees Club at Yankee Stadium for the August 7 game.  Details about this very special offer are below. Contact John Mancino at 516-805-3070 with questions.

Patients Invited to Apply for CAF-ApoPharma Distinguished Scholar Award

Monday, June 22nd, 2015

June 22, 2015 – The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2015 CAF ApoPharma Distinguished Scholar Award. The CAF-ApoPharma Distinguished Scholar Award, which was established last year, is made possible through a grant from pharmaceutical manufacturer ApoPharma. CAF will award up to two scholarships to a U.S. citizen(s) with a clinically significant […]

Thank You to the Supporters of the 2015 Patient-Family Conference

Thursday, June 18th, 2015

June 18, 2015 – The Cooley’s Anemia Foundation wishes to acknowledge those companies which have provided funding support for this year’s Patient-Family Conference June 26-28. Those companies are ApoPharma, bluebird bio, Novartis and Sangamo. This funding is crucial in enabling CAF to present this Conference, which shares so much valuable information with our patients and […]