Month: May 2015

OSIA Verdi Lodge Care Walkers

May 19, 2015 – A big shout out to the Giuseppe Verdi Lodge of OSIA, who continue to be among our most consistent supporters and boosters! Their Care Walk this year raised more than $950. We appreciate the love and support of all the brothers and sisters of OSIA.

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Texas Hold ‘Em Tournament for CAF is May 21

May 13, 2015 – Cut the deck and get ready for fun! Life Quality BMW’s Annual Texas Hold ‘Em Tournament and Fundraiser for Cooley’s Anemia will be held Thursday, May 21 at Life Quality BMW, 6223 2nd Ave in Brooklyn, NY! Check-in is at 6:30 and the start time is 7:00. For details, visit https://www.firstgiving.com/fundraiser/lifequalitybmw/Texasholdem2015.

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Parent Perspective: Raising a Child with Thalassemia

May 13, 2015 – Amy Long, the mother of a child with thalassemia, has generously shared her experiences with raising her daughter, who was born with thalassemia. CAF thanks Amy for allowing us to post this warm and loving story. Raising a child with thalassemia is both devastating and rewarding. By having a child with […]

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TIF Announces Winners of Video Challenge Contest

May 13, 2015 – The Thalassaemia International Federation (TIF) has announced the winners of its “Living with Thalassemia” Video Challenge Contest. Those winners are: Winner of the First Prize – 500 USD Marsha De Salvatore for the video “Comedy Therapy” Description: The inspiring story of a patient and a stand-up comedian who talks about […]

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Help Include Thalassemia in NHLBI Strategic Vision

May 12, 2015 – The National Heart, Lung and Blood Institute is seeking input from the medical and patient communities for their Strategic Visioning Process. We encourage members of the U.S. thalassemia community to participate to help ensure that the needs of the thalassemia community are heard and considered as the NHLBI makes its plans […]

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Cooley’s Anemia Advocacy Forum Update: May 1, 2015

May 1, 2015 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community. (A brochure about CAAF can be downloaded by clicking here.) Following is a report from Lyle Dennis […]

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