Month: January 2015

Registration for 2015 Care Walk Is Open

January 27, 2015 – Registration for the Cooley’s Anemia Foundation’s 2015 Care Walk Is Now Open! www.thalassemia.org/CareWalk2015   Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. The Care Walk on May 3, 2015 will raise funds to fight thalassemia, […]

Read more


Gene Therapy Study Adds Sites in Los Angeles

January 22, 2015 – A new trial site for the Northstar Study of gene therapy in patients with beta-thalassemia major has opened up in Los Angeles, CA. This trial site is in addition to the ongoing trial sites located in Chicago, Philadelphia, and Oakland. To determine whether you might be eligible to participate in the […]

Read more


Spend Valentine’s Day Letting Your Heart Dance

January 16, 2014 – The Staten Island Hilton Garden Inn will be ablaze with merriment and dazzling dancing on Saturday, February 14. That’s when the New Jersey chapter of CAF will host its annual “Let Your heart Dance.” One of CAF’s most eagerly-anticipated annual events, the “Let Your Heart Dance” features a full sit-down dinner, […]

Read more


Care Walk 2015 Locations

          We are in the process of gathering information on public Care Walks. Unless otherwise noted, the Care Walks listed below ill take place on Sunday, May 3, 2015. Please check back here later to see if a Walk has been added near you. Arizona Chandler Team Arizona Desert Breeze Lake in Desert […]

Read more


Q&A with Dr. Richard Ward: Non-Transfusion-Dependent Thalassemia

January 13, 2015 – Below, Dr. Richard Ward answers some commonly-asked questions regarding non-transfusion-dependent thalassemia and its treatment. Non-transfusion-dependent thalassemia (NTDT) is the term given to individuals with thalassemia that do not require regular blood transfusion but who still have some complications. This differentiates you from both thalassemia major and thalassemia trait/minor, respectively. There are […]

Read more


Chelation Use and Illness

January 12, 2015 – We would like to offer this advice from our Medical Advisory Board Chair, Dr. Ellis Neufeld, concerning some situations in which one may need to consider temporarily halting chelation therapy while treating another issue: 1. As a general rule, patients should always halt chelators (any chelator) temporarily for fever, and call […]

Read more


Cooley’s Anemia Advocacy Forum Update: January 12

January 12, 2015 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community. (A brochure about CAAF can be downloaded by clicking here.) Following is a report from Lyle Dennis and […]

Read more


Staten Island Blood Drive Is On January 25

January 12, 2015 – Residents of Staten Island, NY: Our Lady of Pity Church and the Staten Island Chapter of Cooley’s Anemia Foundation are hosting their annual winter blood drive on Sunday, January 25, from 8:15 a.m. to 2:00 p.m. Please make a special effort to come and donate blood if you are able! The […]

Read more


Our 2015 Resolution: Making a Difference for You

January 5, 2015 – The new year is well and truly begun and the Cooley’s Anemia Foundation has made its resolutions for 2015, the biggest one being: We resolve to do everything we can to make a difference in the thalassemia community. With that in mind, we want to take this opportunity of the start […]

Read more


AHEPA Chapter Makes Donation to CAF

January 4, 2015 – CAF is pleased to announce that the Board of the William G. Helis Chapter 310 Order of AHEPA Charitable Foundation has made a generous $1,000 donation to CAF to help further our Foundation’s mission and goals. AHEPA is the American Hellenic Educational Progressive Association, a national organization dedicated to promoting Hellenism, Education, […]

Read more


Secured By miniOrange