Nominations Open for Panos Englezos Prize

Monday, December 28th, 2015

December 28, 2015 – Nominations are open for the 2016 Panos Englezos Prize, awarded jointly by the University of Nicosia Medical School  and Thalassaemia International Federation (TIF) to individuals who have made an outstanding contribution to the field of hemoglobinopathies. Specifically the Prize is awarded on a biannual basis to an individual who has made […]

Nutrition 1: Three Simple Suggestions for a Healthy Diet

Wednesday, December 16th, 2015

December 16, 2015 – In the article below, Ellen Fung, PhD, RD of UCSF Benioff Children’s Hospital Oakland and Farah Sultan, RD of McMaster University, share some nutritional information for people with thalassemia. One of the most common questions we are asked as nutritionists is, “What should I be eating?” In many ways, the diet for […]

Interview: Dr. Maria Domenica Cappellini on Clinical Features of Thalassemia

Wednesday, December 9th, 2015

  Dr. Maria Domenica Cappellini presented at the 10th Cooley’s Anemia Symposium on “Clinical Features of Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia […]

Hematology Meeting Presents Information of Interest for Thalassemia

Wednesday, December 9th, 2015

December 9, 2015 – The American Society of Hematology (ASH) held its annual meeting from Dec. 4 – 8 in Orlando, FL, and CAF was once again there to distribute information, meet with clinicians and researchers and attend educational and scientific meetings of relevance to the thalassemia community. Below is information on a few of […]

Interview: Ellen Fung on Nutrition and Thalassemia

Friday, December 4th, 2015

Dr. Ellen Fung presented at the 10th Cooley’s Anemia Symposium on “Nutrition for Patients with Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia field […]

Interview: Vip Viprakasit on NTDT

Wednesday, December 2nd, 2015

  Dr. Vip Viprakasit presented at the 10th Cooley’s Anemia Symposium on “When to Transfuse in Patients with Non-transfusion-dependent Thalassemia.” CAF spoke with him at the Symposium about this topic; his interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital […]

Join CAF in Making Giving Tuesday a Day to Remember

Monday, November 30th, 2015

December 1, 2015 – Today is Giving Tuesday, the online community’s annual day for making charitable donations to causes that inspire and move us to make a difference – like the Cooley’s Anemia Foundation.  We hope that  today you will let people you know and love know that CAF matters to you. Several members of […]

Save the Date! 2016 Patient-Family Conference is July 8-10, 2016

Tuesday, November 24th, 2015

November 24, 2015

CAF Accepting Applications for 2016 Research Grants and Fellowships

Thursday, November 12th, 2015

November 6, 2015 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia.  The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia;  Clinical Trials in Thalassemia Cell and Gene Therapy;  and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH […]

Cooley’s Anemia Advocacy Forum Update: November 2015

Thursday, November 5th, 2015

November 4, 2015 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community.  (A brochure about CAAF can be downloaded by clicking here.)  Following is a report from Lyle Dennis […]