Month: December 2014

Chicago News Channel Airs Story on Gene Therapy for Thalassemia

December 30, 2014 – WGN-TV in Chicago aired a story tonight on a thalassemia patient who has undergone a gene replacement therapy process. The clip and accompanying story can be accessed by clicking here. The Cooley’s Anemia Foundation is thrilled that progress is being made in the area of gene therapy and gene editing for thalassemia. […]

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CAF Applauds Advances in Thalassemia Reported at Annual Hematology Meeting

December 11, 2014 – Exciting data from studies looking at new treatments for thalassemia presented at the annual meeting of the American Society of Hematology builds upon science supported by the Cooley’s Anemia Foundation and gives hope for the development of significant new treatments for the genetic blood disorder known as thalassemia. Two of the […]

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Cooley’s Anemia Advocacy Forum Update: December 8

December 8, 2014 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community. (A brochure about CAAF can be downloaded by clicking here.) Following is a report from Lyle Dennis and […]

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Patient to Tweet About Tranfusions on December 3

December 1, 2014 – Alicia Somma, a member of the thalassemia community, will tweet about the transfusion experience on CAF’s Twitter account (@cooleysanemia) on Wednesday, December 3. CAF asked Alicia to tweet throughout the day as she gets one of her regular transfusions, in order to let people have a better idea of what is […]

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CAF Welcomes Two New Staff Members

December 1, 2014 – CAF is happy to welcome two new additions to the Foundation’s staff: Sandy Gilbert joined us on November 10, and Mary Woldegiorgis joined us November 17. Sandy Gilbert As our Patient Outreach Director, Sandy will work on several exciting initiatives developed under a cooperative agreement between CAF and the Centers for […]

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