Month: October 2014

Nutrition for Thalassemia Q&A with Dr. Ellen Fung

October 31, 2014 – CAF periodically receives questions from patients on a wide range of topics related to thalassemia and its treatment, including diet and nutrition. We have shared a few of these questions with Ellen Fung, PhD, RD, of Children’s Hospital Oakland Research Institute. Dr. Fung has advanced training in nutrition and a long-standing […]

Read more


Bowling for a Cure on November 16

October 25, 2014 – Can you spare the time to strike a blow for thalassemia and bowl everyone over with your support? If so, mark November 16 on your calendar! That date (a Sunday) is when the Suffolk chapter of CAF will hold a “Bowling for a Cure” event from 2:00-4:30 p.m. at Bowlmor Lanes in Melville, NY. Organized […]

Read more


Cooley’s Anemia Advocacy Forum Update – October 17

October 17, 2014 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community. (A brochure about CAAF can be downloaded by clicking here.) Following is a report from Lyle Dennis […]

Read more


Q&A with Dr. Ellis Neufeld

October 16, 2014 – CAF periodically receives questions from patients on a wide range of topics related to thalassemia and its treatment. We have shared a few of these questions with Dr. Ellis J. Neufeld, the Chair of CAF’s Medical Advisory Board and Associate Chief, Division of Hematology/Oncology at Boston Children’s Hospital. Dr. Neufeld has kindly […]

Read more


Patient Panel Explores Living with Thalassemia

October 9, 2014 – One of the most praised presentations at this year’s CAF Patient~Family Conference was the patient panel, during which several patients shared their experiences in living with thalassemia. Among this year’s participants were Aaron Cheng, Anish Goel, Chi Pham and Jaimee Versace. “In my presentation, I emphasized how important it is for […]

Read more


Gene Therapy Update

October 7, 2014 – Gene therapy and gene editing continue to hold promise as a potential curative approach for people with thalassemia. In recent years, genetic-based approaches to thalassemia have begun moving from animal studies into early stage clinical trials involving human subjects. Memorial Sloan-Kettering One of these trials, a Phase 1 study entitled “ß-Thalassemia […]

Read more



Cooley’s Anemia Advocacy Forum Update: CAF Meets with Government Agencies

October 2, 2014 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community. (A brochure about CAAF can be downloaded by clicking here.) The following report comes from Lyle […]

Read more


Secured By miniOrange