Month: August 2014


CAF’s $300,000 Medical Research Funding Moves Field Forward

August 25, 2014 – New explorations in gene editing. Connections between thyroid hormones and hemoglobin. Efficiency and safety in gene therapy. Using a protein to control iron. These are the ideas behind the four exciting new studies being funded by the Cooley’s Anemia Foundation this year. These new fellowships join four renewed fellowships and a […]

Read more


TIF Holds “Living with Thalassemia” Video Challenge

August 25, 2014 – The Thalassaemia International Federation (TIF) is holding a special “Living with Thalassemia Video Challenge,” asking members of the thalassemia community to share videos about their experiences dealing with thalassemia. Participants are asked to upload a 2-5 minute video about experiences that made them feel good, hopeful or inspired. “By sharing stories,” […]

Read more


Presentations from 2014 CAF Patient~Family Conference

August 20, 2014 – Below are links to the slides that were used in many of the presentations from this summer’s Patient~Family Conference. Please click through to view the slides. Presentations are listed alphabetically. The CHOP-HUP Transition Program – The Philadelphia Experience Fertility in Thalassemia Gene Therapy and Other Curative Approaches Genome Editing for Thalassemia The […]

Read more



Secured By miniOrange